Chronic Illness & Endometriosis Health

Hope on the Horizon

blonde-painThis morning I did not want to go to work, again. The last two days I have started to experience an odd, light-headed feeling throughout the day. Basically, I am constantly dizzy. Nothing has changed in my medicine or diet There is no explanation right now.  I just feel off.
Add all of this on top of my ordinary pelvic pain and you have the perfect storm of one unmotivated employee. However, for some reason, I have actually accomplished more in the last two days than I have in the last week! I have visited the jail twice, completed multiple plea offers and subsequent sentencing hearings, and organized my case files for the upcoming pretrial conference.

On Tuesday my husband and I visited with a specialist in Jacksonville who came highly recommended by Nancy’s Nook. Admittedly, I was apprehensive about the appointment. Over the last six weeks, we have encountered numerous doctors who refused to listen to anything I said, did not take me seriously, dismissed my pain, and handed me off to other doctors. Quite frankly, I went in with low expectations.

Nonetheless, within the first five minutes of the consultation, the doctor had hit almost ever topic of concern I had and validated my reasons for being there. She told me she understood how painful endometriosis is and how difficult it is to find a physician to take you seriously. She expressed shared frustration with the only detection method being surgery – although she mentioned the emergence of two new detection protocols that should be available for clinical use over the next few years (a blood panel and biopsy marker test). She was very informed with the new research in the field, mindset and struggles of patients, and realities regarding fertility (she was extremely hopeful for us).  She even explained adenomyosis and that it does not appear to be present, but could be found upon the laparoscopic surgery. She went through what it would mean and how we would approach it, if found. I loved her preemptive approach to these conditions instead of just being like “We’ll cross that bridge when we get to it.”

After leaving the doctor’s office, I was so giddy! She let us know that I will receive a phone call this week to schedule the excision surgery and it should be sometime in January. We were expecting March or April, so getting pain relief, even if it’s only a small relief, a few months early will be a huge blessing!  I cannot wait to get out of surgery and give Dr. Easter* a big ol’ High Five!

This condition is a pain in the bum (well, pain in the pelvis) and I do not wish it only anyone. After speaking with others, though, I have learned that there are so many people who have endometriosis and have gone undiagnosed because they thought their pain was “normal” period pain or were told not to worry by a doctor at some point. Yet, our doctors need to be educated so that we can be educated and more young women can be helped.
There is no reason for the suffering to continue. There is no reason for the infertility to continue. There is no reason for the mental anguish to continue.

Endometriosis does not only affect a woman physically. It affects you mentally, spiritually, and emotionally, because it penetrates every aspect of your life. This is why when we met Dr. Easter and she started discussing the topics I had been desperately researching over the few weeks; including, excision versus ablation, adenomyosis, hernias and endometriosis, and pain management, I knew we had found our surgeon.  I do not want to get my hopes too high but I am hopeful that some relief will be attained through this meeting with Dr. Easter.
She will at least be an amazing source of information and I am grateful that we were brought to her.


*Names have been changed to protect anonymity

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