Captain’s Log, Stardate 9.10.2017, Day 1 Hour 1 When will the governor announce marshal law? A hurricane of this magnitude seems to necessitate it. Our leader has already attempted to commit a felony in the name of survival. Luckily, my first officer and I were able to persuade him out of it, for the time […]
Having endometriosis or any chronic illness presents a lot of interesting challenges to any relationship, but now that I am married I feel the pressure ten-fold! Since the first moments my husband and I started dating, he knew that our relationship would be a challenge. There was one outing that I think will forever define how our relationship is different than others – the Kennywood trip.
Do. Not. Move. Seriously, do not attempt to move at all. Yesterday was the BIG day for me – my laparoscopic excision surgery was completed! And, as the internal numbing agent began to wear off towards midnight, I started to realize that my doctor’s warning “the second day is the worst” was dead-on accurate. For […]
The best part of this year is going to be starting it with the surgery I have desperately been awaiting since the start of my pain relapse in November. My doctor’s office finally called on Friday, December 30, and informed me that I will be having my pre-op appointment on January 17, and surgery on January 19, 2017. I could not have been excited – you would have thought I was told I’d won the lottery!
Yesterday was not a good day for my pain. I had to leave work early and was lucky to make it home to my husband’s comfort. I got into bed and snuggled up with my heating pad. Unfortunately, as soon as I was starting to feel normal again and went to dinner with the husband – a migraine decided to creep up on me. As soon as we got home, I quickly folded a load of clothes, then texted the husband that I was going to lay down until my headache cleared.
The holiday season means different things for different people. For me, Thanksgiving is about family. No matter where I am in my life, I always want to be surrounded by my family. It is true that my perspective of “family” has changed over the course of the last few years, mostly out of necessity due to my distance from my blood family. Yet, when the opportunity to spend actual Thanksgiving with my family came up this year, for the first time in nearly six years, I moved heaven and earth to make sure it happened!
Today was a good day. The last few weeks have not afforded many good days so this was a pleasant treat. I was able to push through my pain to actually enjoy my husband and be present for the day we had together. It was a good day.
So little is known about endometriosis in mainstream, though, so how can I blame my family, friends, or co-workers for not understanding this disease? Maybe it is up to me to spread the word in my community about this illness to increase support for research. Doctors do not even know if it is hereditary! How is it possible that the ONLY way to diagnosis endometriosis definitively is through laparoscopy? Yes, it does make it easier to be able to do an excision surgery at the same time once located, but man, there has to be a less invasive way to diagnosis.